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I asked him, "What did you have for dinner tonight?". He answered, "Lulu's house". I asked, "What did you eat?". He answered, "Spaghetti with covered cheese". (this means spaghetti covered in cheese)
Not all that interesting a conversation, but I have a feeling it is the beginning of something. He is about to start pre-school so I am curious how much he will come home and tell me about.
Maybe it is the warmer weather? Or him deciding to be more efficient with his time? (if he is stuck in the stroller might as well use the time wisely...)
And... The unsung hero of the last week has been Grandma. I called her a week ago and said "I need my mommy!". She arrived the following day and has been doing the day shift all week. I am not sure what we would have done without her!!
The big news however is his eating! Without the feeding tube! He has been doing very well, taking down 80-100ml every 3 hours. That is about what you would expect of a totally healthy baby his size. Yeah!
We still have a bit to go as he is still working too hard to breathe and eat. His chest is still drawing in too much when he breathes and his heart rate is going up too high when he eats. However, he is definitely getting better. I am still optimistic about a Monday or Tuesday discharge.
Here he is chilling in his bouncy chair, without the feeding tube.
Reagan has had some ups and downs the last few days, but he is definitely getting better. The doctor is hearing less "crackling" sounds in his chest, he is having more of his feeds from the bottle, and is eating more every feed - we are up to 60ml every 2 hours.
However, thinking we would be out of here on Friday was overly optimistic. It is looking more like early next week.
He is using a dummy (pacifier) for the first time and seems to like it. It does make his heart rate go up alot, we are thinking frustration that no milk is coming out??